I have never written, or really talked about my life as a Mom to a Type-1 diabetic. I thought it would be good to start a forum for discussion, maybe there are other parents out there who can relate.
My daughter, "Sissy", is nine. She was diagnosed at age 6. At first it was such a shock to us, our lives kinda shut down for a couple months while we tried to figure things out. We were very thankful to have great resources in the area we lived, but slowly, life kinda got back to normal, and we didn't focus too much on it. It is not that we are in "denial", but we really haven't allowed the disease to control us. There are things that we would love to do someday, like the Bearskin Meadow Camp, but it feels like we are still in that early part of just trying to "live".
For us, the hardest part is watching our daughter struggle with desiring food, feeling like she cant have it, feeling like she has to "sneak" and "hide". We don't want her to grow up feeling like "life revolves around food". We are doing everything we can to cultivate the philosophy that your "Eat to Live", rather than "Live to Eat". It is hard having to tell her to "wait", or "take your blood sugar first", or "maybe you can have that later".
If you are a parent to a Type-1 Diabetic, I would love to hear the struggles you have and maybe share your ideas and things that life morale for your family.
- gina
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